Sheena had a wonderful Christmas. She got her first tooth on Christmas Eve. Bottom left, and thankfully she hasn’t seemed too fussed with it breaking through. She was very excited on Christmas day, and was all chat, and all smiles. She liked being rolled around, and liked being helped to sit up and watch everything. She was delighted to have all the extra company. She skipped puree for Christmas lunch and instead had roast pumpkin, and cooked turkey sitting on my knee at the table.
The family we were visiting had a son who passed away a couple of years ago in his early twenties. He had a genetic condition called Fredrick’s Ataxia. Not noticeable until he was about 8 when he all of a sudden started having trouble with reading, and with co-ordination. It took them 18 months to get a diagnosis. Before we had Sheena I had no idea about the emotional turmoil that having a kid with extra needs can place on parents. I would think of the practicalities, like the extra time it would take to get him in and out of the wheel chair, or how restricting it might be for holidays. I did not at all understand how difficult it would be to see your child’s abilities regress. They saw it slowly, and while Sheena had her epilepsy we saw the process happen rapidly. I feel a lot more equipped to be able to talk to people about life’s hurdles these days. I would have dodged the subject previously, but now I know how nice it is for people to show genuine interest. Live and learn.