Saturday, January 13, 2007
Sheena had another 'very good' report card from her Neurologist. He reviewed her MRI and last EEG, and both were looking very good. The MRI had no focal abnormalities which is what they were particularly interested in, given her Infantile Spasms. He gave us the OK to reduce her Epilim by 1ml in the morning, so she'll now be on 3ml in the morning and 4ml at night. He wants her to stay on Epilim for at least 6 months, possibly 12 months. As the brain matures epilepsy can come and go, so if she is on anti-convulsants, it might hold off seizures that may start over the next little while.
In discussing outcomes he said something that I have said to other people when they've asked me about Sheena's level of DS in the early days. He said that we presented him with a baby without DS and IS, he would have no way of knowing if their IQ would be 70 or 135. Similarly for Sheena, it is just unknown. However, he was a lot more positive given Sheena's recent turn-around. I asked if she could catch-up to her peers and he said, "Yes, absolutely".
We ran into one of the Dr's that was seeing Sheena while she was in hospital a while ago, before she went on the Pred treatment. He said, "Wow, you sure can see the Pred." We don't see her as massively bloated anymore, but it is good in a way that others do, as it means that she still has more deflating to do.