Friday, October 20, 2006
We are off to a Down Syndrome Camp this weekend for new parents. We had booked to go before Sheena was diagnosed with her epilespy and all the problems she's had lately. I am quite unsure if it is going to work-out, but we'll give it a go, and if it doesn't, we'll bail. I have warned the camp co-ordinator that Sheena is very difficult at the moment. Volunteer Therapy Students are there to look after the babies and give us parents lots of time-out. They are going to give Sheena a person all to herself. I am telling them that she is like a collicy newborn - so they have been warned. I figure that we need the respite more than most at the moment.
She was better yesterday - 10 smiles. Today a lot more moaning, but still a little better. She has probably gotten over her gastro, so is able to feel a bit more comfortable in herself.
News from the the Neuro that we saw on Wednesday. He suggests that Sheena's development will take another 6 months at least before she gets back on track to what she was at 6 months. I try to look at it as just numbers, and she'll get there eventually. My mum likes to put it that we have an 8kg newborn, instead of a an 8 pound newborn.