Thursday, August 17, 2006
Routine - What Routine???
Given our really rough patch with Sheena Tara, I have been trying to keep life simple, and to let Sheena have proper oportunities for quality sleep during the day. However... this is not so simple! Yesterday I had to go across town to Windsor, (a 45 minute drive) to buy an expensive high chair that I'd bought on ebay. I decided to go for a flash one, because it has lots of positions that should be good for Sheena. They are $400 in the shops, but I got it for $190 on ebay - cool. While I was over there, I also went to Noah's Arc, a specialist toy library. I got Sheena some really groovy stuff. But... there goes Sheena's routine. I had to wake her up as soon as we got there, because she'd gone to sleep in the car. Not a very happy camper as the occupational therapist help me select toys for Sheena. I know that Sheena is only 7 months, but she is breaking down the stereotype that 'they are such happy kids'. I really hope this is a bad episode of teething.
We went to a talk at the DS Association about education options last night. The speaker was an academic, and very pro-inclusion. http://www.include.com.au/ He said some very powerful things. Such as, is there any one thing that DS people share in common with all other DS people? The answer is no. The Syndrome is highly variable. For example, Sheena has brushfield spots in her eyes (which are stunning), but she doesn't have a single crease in her palm. Sheena has a heart condition, but she rolled over when she was 16 days old (yes that wasn't a typo).