I've wanted to meet another family that have gone through the whole Infantile Spasms ordeal since Sheena was diagnosed. I have spoken to the Epilepsy Foundation, checked blogs, but to no avail. My only connection was a yahoo group with parents chatting about the different treatments and the like. However over the last 2 days I have been connected with two other families within a 30 minute drive from us that also had the diagnosis.
Here is Sheena particularly delighted in her wave jumping exploits.
5 comments:
Wow that is great! Glad you found some so close by. Sheena is looking like a happy camper in the water :-)
That's great that you found 2 other families!!
Are the kids of a similar age? It would be good to meet them.
This is a gorgeous photograph. Your daughter is a real cutie! Thanks for stopping by my blog - so you were born in Nova Scotia? And now you live in Australia - where abouts? My husband has lots of family in Melbourne, they are coming out here for a reunion this September so that should be fun. We have both lived in the Uk most of our lives though. It's such a small world, and seems so much smaller when you're in blogworld too!
I look forward to reading more about Sheena.
Alice :-)
Hello, I followed your blog from Always Chaos around here. My name is Traci and my daughter Ashlyn is 7 and has Down syndrome. She also had infantile spasms as a baby. They started around 4 mos old and gone at 16 months. She is doing awesome! Feel free to contact me!
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