Sheena gave me a nice surprise yesterday. She had her mowhawk back after her evening bath. She spent her first 4 months with a mowhawk, so it was like old times. She was not well up until about 2pm, then she was fine for the rest of the day. She had 4 seizures, instead of her usual 1, so I rang the Neuro's and they've changed her meds yet again. Just based on my explanation of them, they think they are Focal Seizures (unlike IS, not too much effect on her development and usually easy to control with anti-convulsants).
Today, she's been good all day, apart from 2 seizures early in the morning that lasted about 5 seconds each. We had a respite carer look after her in the afternoon, and she slept 3 of the 4 hours. Lucky Helen!
While she was being looked after, I managed to catch up with my local Mother's Group. Sheena was missed, and it was odd to be there without her, but fantastic for me to have a few hours chatting with the girls. Hopefully if she stays on the mend, we'll both be back next time.
Sheena was well enough to have a bit of a play on her activity mat without getting distressed.
4 comments:
YAY for the mohawk. I love it.
and to respond to everything else, its good they are getting to be less damaging siezures. Its totally heartbreaking, but you and her are both legends!!
Love ya
C'mon Sheena, get with the times. Mohawks are so 80's:) This is the new Millenia. You need to have a blackberry strapped to your hip and a latte in your hand.
Sheena, can you also chill with the siezures a bit?
love the mowhawk look!! Hopefully the change in meds will help with the seizures!
Baby mohawks are the best! Joey gets some pretty darn good ones after his baths too! Sheena and Joey should start a punk rock band someday!!!
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