tag:blogger.com,1999:blog-31491957.post3284779721984314204..comments2023-06-29T17:38:09.948+10:00Comments on Sheena Time: "The" Down Syndromejotcr2http://www.blogger.com/profile/01366448629677893285noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-31491957.post-18255713791987878752007-01-18T09:44:00.000+11:002007-01-18T09:44:00.000+11:00I understand what you mean. It's like the world wa...I understand what you mean. It's like the world wants to put our kids into this nice little box and say x and x aobut them, instead of looking at them as individuals- which they are!Michellehttps://www.blogger.com/profile/02441176684416139172noreply@blogger.comtag:blogger.com,1999:blog-31491957.post-40929084602116261942007-01-18T00:56:00.000+11:002007-01-18T00:56:00.000+11:00Sheena looks fabulous. One of the reasons my wife...Sheena looks fabulous. One of the reasons my wife has gone back to school to get her masters as a physicians assistant is because of her experience in the healthcare community with our daughter Amanda. It seemes that when ever we took her to the doctors for something they didn’t diagnose the problem, but the DS.BStronghttps://www.blogger.com/profile/15795381642029132764noreply@blogger.comtag:blogger.com,1999:blog-31491957.post-85239869383538845312007-01-17T18:33:00.000+11:002007-01-17T18:33:00.000+11:00She is so cute in the pic. I love her hair. Vince ...She is so cute in the pic. I love her hair. Vince sweats - a lot :-) <br />But I know exactly what you mean about the people only seing the DS. It is exhausting to have to arguee with the diagnose rather than the person.<br /><br />I very much agree with Kim, it is important that we talk about our kids to the people that don't know anything about DS (just like I did not before Vicne was born). But I do also think it is important to act as 'normal' (hate that word) as possible, so that others see that we are just that - 'normal'.Christina Mhttps://www.blogger.com/profile/00777292339669888348noreply@blogger.comtag:blogger.com,1999:blog-31491957.post-66750728835442055762007-01-17T15:24:00.000+11:002007-01-17T15:24:00.000+11:00wow. i can really see a change in sheena in this ...wow. i can really see a change in sheena in this picture.. she looks great!!!!! iam sorry she doesnt deal with heat well. mayson does sweat but i have heard of many kids with DS that dont.<br />People need to get over it and start looking at our kids no differently as anyone else!! I have had more positive reflections from people than negative so i just hang on to those and forget the rest!!!Amy Flegehttps://www.blogger.com/profile/01237104230554615007noreply@blogger.comtag:blogger.com,1999:blog-31491957.post-45468399756040102892007-01-17T07:16:00.000+11:002007-01-17T07:16:00.000+11:00I love your blog! What a gorgeous girl! Stop by an...I love your blog! What a gorgeous girl! Stop by and say hi! we have a 2 year old boy, Jaden with T-21. NoelleL. Noellehttps://www.blogger.com/profile/04067747207095687809noreply@blogger.comtag:blogger.com,1999:blog-31491957.post-4675204864350319402007-01-17T04:00:00.000+11:002007-01-17T04:00:00.000+11:00It can be hard when we have to deal with people wh...It can be hard when we have to deal with people who just dont get it..One problem we have , and this is with LPNs that worked with Nathaniel!!! They use the "R" word! like it is an everyday word...Mike gets right upset when he hears it and tells them to please not use that word here. People just don't think! <br />I always tell people, remember to put the child before the disability, so it is " Nathaniel, the little boy with Down syndrome" Not " the Down syndrome boy, Nathaniel" Cuz you see the disability first and the child second.Sarahttps://www.blogger.com/profile/06008510371060431962noreply@blogger.comtag:blogger.com,1999:blog-31491957.post-65184873142755323422007-01-17T02:23:00.000+11:002007-01-17T02:23:00.000+11:00Joey sweats a lot too! I too understand your frust...Joey sweats a lot too! I too understand your frustration. People just don't understand.Jessicahttps://www.blogger.com/profile/10338789403683819597noreply@blogger.comtag:blogger.com,1999:blog-31491957.post-70387368137078818082007-01-17T00:48:00.000+11:002007-01-17T00:48:00.000+11:00Meg doesn't sweat much and overheats easily, which...Meg doesn't sweat much and overheats easily, which is why in the summer we chose to go to Northern France on holiday instead of the Mediterranean. How were we to know it would be 32+ in a fortnight of unusually hot weather?<br /><br />I can understand your frustration at some people not being able to see past the DS. This is why it becomes so important that we talk of our children having DS, rather than being DS children. It is <b><i>a</i></b> characteristic of our children, not <b><i>the</i></b> defining characteristic.<br /><br />But generally, it's a case of getting to know your child. <br /><br />If you think about when you first meet someone. Imagine they have, say, a huge nose. If you've only been briefly introduced to them and don't really know much else, then their nose becomes their defining charactersitic. <br /><br />In time, if you get to know them better, personality traits become more defining than physical ones.<br /><br />Meg is probably shorter and stockier than many of the girls her age (although not all). She can be extraordinarily loving and caring, and she can be a right old grumpy pain in the arse.<br /><br />She is an individual, just as Sheena is.Kim Ayreshttps://www.blogger.com/profile/02656677501116622953noreply@blogger.com